|
|
 |
||
|
|
|||
| Jamie's Photo Album | |||
|
|||
|
|||
|
|||
|
|
||
|
|||
|
|
|
||
|
|
|||
|
|||
|
|
|||
|
|||
|
June 21, 2009
HAPPY FATHERS DAY
Hi everyone,
Jamie had a big weekend. She graduated from McCourt Middle school Friday. As you all can imagine it was a great accomplishment for Jamie to walk across that stage and receive her diploma. All her tutors were there and received a citation from Mayor McKee. Every worked hard this year to help Jamie to get to this point. Her hard work has been paying off as she progresses day to day. Jamie would like to thank everyone for the incredible day she had and thank you for all the cards and gifts. Tedy she hasn't taken off her jersey since it arrived. Dave Czarn thank you for all the pictures. Jim and I were able to enjoy every second knowing that Dave Czarn was taking pictures for our memories. The pictures are in Jamie's picture album. She was so nervous and not to happy she had to walk in front of everyone but later at home she said she was so happy we all made her do it. Thanks go out to her teachers that helped give her that little push. We celebrated at Greggs in Providence with good friends the Czarn family. The day was perfect. Thank you David Dansereau for skipping work for Jamie. It was extra special to share the day with you. Thanks to my niece Crystal for doing a great job on Jamie's hair. Thanks to Dr. Morelle for getting all her tutors there. Really just thanks to everyone we are so so happy Jamie made it. Next goal to get on skates and meet Nick Jonas and of course get David Dansereau on Oprah spreading stroke awareness. We will see you all around the rinks. Jamie's mom
June 12, 2009HAPPY BIRTHDAY DAVID DANSEREAU Hi everyone,
Today is Jamie's very special friend Dave's birthday. As you all know David Czarn official fightfor7 photographer is the best in the world. Jamie had him make a portrait of Dave Dansereau with pictures from her fundraisers and of Dave crossing the finish line at the Boston Marathon. In the background of the picture were words that we think of when speaking of Dave such as inspirational, courage, hero and so on. We can't say enough good things about Dave. Dave just left the house and he loved his portrait. Jamie has a busy week this week with graduation practice on Wed. and Thur. with graduation on Friday. Our entire family and all our friends are so proud of her this year. Jamie has clawed her way back little by little and just so awesome that she will cross the stage by herself on Friday. Sorry I have been so busy and can;t update as much as I would like to. The next big day for Jamie after Friday and of course besides getting back on the ice will be July when make a wish is sending her to meet the JONAS BROTHERS. She has made a calendar for her JB count down. She deserves it and we are so thankful to Jims friend Tony Sampaio for all his help with make a wish. Talk to you soon. God bless you all. Jamies mom
May 28, 2009 Hello everyone,
Jamie continues to do well and is making progress at the partial hospital program at Hasbro children's. Jamie is opening up to the others there and dealing with all the issues that come from a life changing illness. We are still preparing for her graduation and looking forward to august and attending Bay View. We opened the swimming pool this weekend. It will be great therapy for her and I know puck can't wait to swim with her. He loves the water and he has to be locked out of the bathroom because he jumps in the shower with her every chance he gets. Jamie has been using her scooter daily riding up and down the hill. She hasn't been working out as much at home due to her long days at the program. Friends have been coming over and she has been getting out a lot more. We had lots of fun this past weekend with the Czarns and the Pennoyers. We have been cooking on the grill and Jamie has been making home made Italian ice that she learned how to make from the food network. It is made with fresh squeezed limes and is so delicious and refreshing. Any one that plans on visiting Jamie call ahead to order your ice and she will be more than happy to make it for you. We hope to see you all soon. God Bless you all. Jamie's mom
May 16, 2009
Hello everyone,
Jamie started a 3 week partial hospital program at Hasbro Childrens this week. What it is basically is like a school day. She arrives at 7:30 and stays until 3:15. She gets O.T. and P.T. while there and works with fine motor skills for the right hand. Hasbro rehab sends the therapist which is nice because Jamie already knows them. That is except for the O.T. person. Jamie was so excited to see someone new. She said the O.T. was saying her right side is as strong as her left and that she just needs more strength in her hand. She can use a stress ball which can be helpful in more than one way. She is working as hard as ever for her big come back. I've never seen anyone so driven and work so hard without complaining. The new gym is used everyday not just by Jamie but auntie Charlene runs the treadmill and Ryan and his friends lift weights. I am so happy it is getting a lot of use. We are in the process of getting the pool ready. More great therapy for everyone. Jamie still has a little ways to go but no doubt she is pushing harder than ever. Hope to see you all soon. Jamie's mom
May 7, 2009
Hello everyone,
We have allot going on at this time. Jamie is getting ready to attend Bay View this year. She had orientation last night and had an incredible time there. The entire staff was so nice. Her big sister was Jane who skated in her fight for 7 tourney. Very nice girl who was very attentive to Jamie's needs. I ran into an old neighbor at Hasbro rehab last week and discovered her 10 year old son had a stroke. He used to play street hockey with Jamie and lived one street over for years. He is now 12. How does a 12, 10, and 6 year old that all live near one another stroke in a 2 year span. There is also 2 young brain injuries from cancer and seizure. I called the health department and hopefully they do a follow up. I would hate to see another family have to go through what we have had to. Jamie received a letter from a 42 year old woman who used to live in woon. who had a stroke at 5 years old. A uplifting letter was so appreciated by Jamie. The rollerblading is going well. My brother fully recovered from his heart surgery and has his own apartment now. We built a gym for Jamie in his old room. The gym is complete with a total work bench, a treadmill, balance balls, and loads of free weights. The room is beautiful. Every wall in the gym is decorated with inspiration and hope. Rhode Island Hosp. offers a 3 week summer school program complete with therapy that Jamie will be participating in. I am going back to work this summer and when Jamie is done with her program she will be joining me. Jamie has been having some awesome visit from some close friends and having a great time. I would like to thank the Czarn family for watching out for us always. The Czarns have helped us through tremendously as have the Slebodas. We thank god for these relationships. We are truly blessed. May is stroke awareness month so please take the time to write to Oprah on behalf of David Dansereau. Lets all come together to help other children possibly avoid this long road to recovery. God bless you all. Jamie's mom
April 20, 2009 Hi everyone,
It is 11:33 pm 4-20-09. Jamie is finally sleeping after a very emotional, inspirational, and uplifting day. Today David Dansereau ran the Boston Marathon in honor of Jamie as his stroke hero. Well David is Jamie's hero also and the most inspirational person in her life. Jamie was overjoyed with emotion when she watched David cross that finish line. It is incredible to be able to run and to finish the marathon but that much more meaningful when you are a stroke survivor and to finish. I can't find all the words I am looking for right now to express how much David means to our family. After the race David invited Jamie, myself, and Auntie Charlene back to the Lenox Hotel for Tedy's Team runners and their family and friends. At the hotel David told Jamie he didn't just run in honor of her but wanted her to have his medal. Jamie made me promise not to cry today but I couldn't help it. The whole day was a very moving experience for all of us. To watch these runners in person is indescribable. When we entered the hotel room we seen Tedy Bruschi. Tedy has kept in touch with Jamie since her stroke via texting now they met in person. Jamie was speechless at first. She has been looking forward to meeting him for a long time. They talked and took pictures that are in her album on this site. You can see how happy David and Tedy make her. She can see her future in skating by seeing their examples. They have this one link in common being stroke survivors and look what they have both accomplished after their strokes. I can't think of better role models than the two of them. We are so very grateful to have come together with such amazing human beings. We are blessed. I could go on about how much they do for Jamie and how much they mean to her but we were up very early and I'm getting old so I am very tired. Talk to you all soon. God Bless you all. Jamie's mom
April 12, 2009 Hello everyone,
We would like to wish you all a very happy Easter. Jamie is in good spirits. She had a rough couple of weeks but family and friends rallied around her and she pushed through. Jamie, Jim, and I went to visit Spaulding on Wed. It was great to see everyone but also sad memories and new sad stories. We met a 14 year old girl who played for the wizards. She caught a virus that the doctors have not figured out and she had to be put on life support for a while and had to have all her toes amputated. When speaking with her mom she said the same thing all moms say when their child is at Spaulding and that is we are all grateful that our kids are alive. To many times we all take things for granted. Jamie has some new incentives to look forward to. Jamie will walk across the stage at McCourt Middle School on June 19th to receive her 8th grade diploma. She worked so very hard all year with school which did not always come easy. She has come along way and is almost there. I think it was a long winter for her but she is coming around and getting more positive again. At Spaulding we got to see Bob Sweeney and it was great to share with him what the constraint therapy did for Jamie seeing as how the Bruins Alumni raised the money for it. He was pretty impressed. We just added pictures to her album with Bob Sweeney and Matt Lashoff. Her puppy Puck is getting so big. Puck hopefully will loose weight as soon as the weather gets nice and Jamie can take him for long walks. She is getting out a lot more now. Haley, her best friend and I went to the new Hannah Montana movie Friday. It was O.K. but I liked the Jonas Brothers movie much more. If anyone has any games they want Jamie to go to she would love it. Call and let us know. We miss you all and wish you all the best. God Bless Jamie's mom
March 29, 2009 Hi everyone,
Jamie is doing great. She is so happy that she did the constraint therapy. She is getting more strength and more control over her right hand. We just went to see Dr. Bill Sweet on Friday. He hasn't seen her in office for about 3 months. He was excited to see how much stronger Jamie is since the last time he had seen her. Recovery takes a long time however she keeps plugging away and keeping a healthy happy attitude along the way. Spaulding rehab invited Jamie on April 8th to a new gym room dedicated by the Boston Bruins. Jamie will meet current and former Bruins. The Bruins do so much for children. They are surely a classy organization. Jamie is very excited and hopes to see some of the Bruins that skated in the fight for 7 fundraiser. It will be awesome for them to see what constraint therapy did for her seeing they raised the money for it. They do so much but I wonder how often they get to see the results first hand. It will be a fun time for Jamie I'm sure. Its raining hard today so a good day to get homework and home work out done. Jamie and Uncle Gary are cooking breakfast for the family. Now if I could only teach them how to do the clean up life would be perfect. We hope all is well for you all. We hope to see you all soon. Take care and God Bless. Jamie's mom
March 15, 2009 Hi everyone,
Today's update is about an incredible person who is in Jamie's life. This person is David Dansereau. Some of you may remember meeting him when he visited Jamie in the hospital. David lives here in Cumberland. He is so busy all the time I don't know when he finds time to sleep. He doesn't usually have time to read our hometown paper the valley breeze. One day after Jamie's stroke the valley breeze wrote a story on her that was on the front page. Well David just by chance also had a story in the paper that week about Tedy's team as in Tedy Bruschi's to help raise stroke awareness. David's story was on page 7 Jamie's hockey number. As soon as David picked up the paper and read the headline "young hockey player suffers stroke" he contacted us. David rushed up to the hospital and spent hours speaking with Jamie and having his toenails painted red. You see David is also a hockey player, a nutrition coach, and physical therapist who had a P.F.O. and suffered 2 strokes himself. David knew the road Jamie and our family was going to have to travel and he dedicated himself to being here for all of us since we all met that day in the hospital. Davis is a blessing to Jamie and works with her every Saturday getting her closer to being back on the ice. David and Jamie have this special bond of being stroke survivors. I write to all who read this page to please help David help others like Jamie. I beg all of you to visit David's link on this page www.know-stroke.org/ and find another link to the Oprah show to help David get on her show. David has done so much for Jamie that I want him to be able to help others. Jamie and our family have been to hell and back and we will do anything to help prevent another child and their family from having to travel down this long dark road. Please help David to help others. God Bless you all and Thank You for all your support. Jamie's mom
March 12th, 2009 Hi everyone,
Jamie is doing great. Her cast came off Friday and she was so happy about that. We went to the championship game and it was an awesome game. Way to go Bay View. School is going well and Jamie is back to her regular schedule now. 5 hours of rehab a day instead of 8 so a little bit of a break. Over the weekend she got to take in the new Jonas movie with her friends Haley and Alisha. Surprisingly enough I actually enjoyed the movie also. Jamie will return to school in September and will help me out at work for the summer. Each day brings us closer to returning to life as normal once again. We are looking forward to April 20th Patriots Day to watch Dave Dansereau run in the marathon in honor of Jamie. We will be at the finish line cheering him in. We can't wait. On a sad note to all of you who attended Jamie's fundraiser at Curvin McCabe Elementary may remember Sue Richardson who announced on the microphone that evening. Sorry to tell you that Sue passed away Monday. Sue did so much for Jamie as she did for all children. Just the nicest sweetest person I had the pleasure of knowing. She will be deeply missed.
March 1st, 2009 Hello everyone,
We have so many great things to share with you all this week. Let me stare with Mrs. Feeley's daughters Caroline and Kelsey. If you read in Jamie's message center you will see what great kids they are and just how proud their mom must be of them for thinking of someone else. There are some pretty awesome kids out there that help to bring good out of Jamie's situation. We are so grateful for this. Also this week while Jamie was doing constraint therapy she received a card in the mail. Better get a tissue for this one. The card reads " Hi Jamie my name is Becca and I like you love hockey. I play for 2 teams and spend hours on our backyard rink and shooting pucks in our basement. I watched Miracle so many times we had to get a new DVD! I dream of being in the Olympics too. Even my friends say I was born to play hockey. My mom heard about your story and we were at the NESC rink when you had a big fundraiser. We followed your progress on your website and can't wait to read about your first time back on the ice. We hope it is soon. I just had my 11th birthday. I asked my friends to bring a donation to your therapy fund instead of presents. So here is our small donation to help you. Maybe someday we will play against each other. I hope so. Becca". Well there wasn't a dry eye in the house that day. Jamie couldn't believe that someone so young would do something like this for her. First of all the money was a large amount that will help with cost tremendously. We appreciate these girls just mentioned so very much. Its unbelievable and humbling just how much support Jamie has received. We are truly touched. God Bless you girls. Jamie just finished week 3 of constraint. Jamie wants to share with you all her results this far. Jamie would recommended this therapy to anyone in this situation. Jamie can move her right hand open and closed at will now. Her fingers are now moving around. We can see the enormous improvement almost daily. There have been some rough days which is expected due to frustration. She made it through. One thing that pulled her through her rough days was when Tracey at Hasbro put Jamie on these carpet skates. Tracey had her hands full trying to catch Jamie so she was safe because the minute Tracey put these skates on Jamie she took off. She was taking the corners at Hasbro like she was going in for a break-a-way trying to score. The smile on her face was priceless. Its all she talked about on the way home. She said it was the first time she really felt like she was skating since Aug. 9th. Jamie has 5 days left until the cast comes off. As always we hope all is well with everyone and we thank you all for the prays. Jamie's mom
February 23th, 2009 Hi everyone,
Constraint
therapy
is
going
great.
Jamie
is
getting
more
strength
back
and
her
endurance
is
much
better
as
well.
She
is
also
getting
more
isolated
movement
in
her
fingers.
Its
amazing
that
in
such
a
short
time
with
this
therapy
that
she
is
getting
so
much
out
of
it.
This
therapy
is
super
intense
but
Linda
makes
it
enjoyable.
They
cook
lots
of
snacks
for
the
house
and
play
different
games
daily
to
change
things
up
and
keep
things
interesting.
Hasbro
has
done
so
much
for
Jamie
and
she
is
going
to
have
the
chance
to
give
back.
Hasbro
will
be
holding
a
radio
telethon
to
raise
money
and
Jamie
will
be
helping
them
out.
Also
Jamie
will
be
on
their
web
site
to
help
promote
constraint
therapy.
It
is
awesome
what
Hasbro
is
achieving
with
pediatric
stroke
patience.
Jamie
will
always
give
back
whatever
she
can
to
help
out
another
child
stroke
survivor.
She
is
an
inspiration.
We
truly
are
blessed
with
her.
God
Bless.
Jamie's
mom
February 14th, 2009 Hello everyone,
Great
news!
The
constraint
therapy
is going
great.
Only 6
days in
and she
is
instinctively
using
the
right
side
more.
She is
getting
stronger
and much
more
controlled
movement.
She is
exhausted
as you
can
imagine
but
loving
it. She
does the
6 hours
with
Linda
and a
hour of
tutoring
and then
to
Hasbro
for an
hour of
P.T. So
8 hours
of
therapy
a day.
This is
week 1
so Linda
and
Casey
were
here
today.
She will
have
Sunday
off.
It's
weird
but we
were
talking
with her
therapist
today
about
the
clips
that
Melanie Pellowski
did on
Jamie on
Cox. A
few
hours
later
Jamie
received
a large
package
in the
mail.
It was a
package
of
valentine
goodies
form
Melanie.
It was a
great
pick me
up for
Jamie
after a
very
exhausting
week. We
are
blessed
to have
met
Melanie
as she
is a
super
nice person.
As part
of
therapy
today Linda
and
Jamie gave
Puck a
bath.
When
ever he
has a
bath he
runs
around
like
crazy at
top
speed
almost
like air
drying
himself
until
the
point of
knocking
himself
out. He
and
Jamie
had a
nap
together
after
Linda
left at
2.
Jamie is
still
being a
trooper
and
pushing
forward.
We could
not be
more
proud of
her.
Will
write
again
soon.
God
Bless.
Jamies
Mom
February 10th, 2009 Hello everyone,
Jamie
started
constraint
therapy
yesterday.
Linda
Correia and
Casey
O'Rourke
casted her.
Linda is at
the house
now 6 hours
a day
working that
right arm.
They are
trying to
retrain
Jamie's
brain to use
the right
arm first
instead of
the left.
There are 2
ways to go
during this
therapy.
You can be
miserable at
all the hard
work or you
can make the
best of it.
Well as
usual Jamie
chose the
latter. She
is very
happy to get
the extra
work and is
excited to
see what the
results will
be. Jamie
never stops
teaching me
about the
human
spirit. She
has a better
attitude
than most
adults I
know. She
still never
complains
and just
goes with
the flow.
She has a
great sense
of humor
about this
whole
therapy
which keeps
her going
forward.
P.T. is
still in the
daily
routine and
she is
working with
the slide
board.
Jamie's
thoughts
daily are
still
working to
return to
the ice. We
think about
all of you
often and
miss seeing
you all on a
regular
basis. God
Bless you
all.
Jamie's mom
January 24th, 2009 Hi everyone,
Jamie, Jim, and
I are going to
see Bay View vs.
Cranston West
tonight in
Burrillville.
Its been a while
since the three
of us have been
able to attend a
game together.
We are tiring to
get out as much
as possible
before she gets
casted. Her
schedule will be
so tight then we
will not be able
to go out much.
Hasbro has
casted a 4 year
old that had a
stroke after
birth with lots
of promising
results. We
can't wait even
though it is
going to be very
hard for Jamie.
She will get
through it as
always. She is
very, very
tough. School is
going great and
Puck is getting
so big. He
weighs 9 pounds
already. Jamie
has been
enjoying
spending time
with friends and
we have made
several meals
together to
share with
them. Jamie had
a slow week at
the gym because
she had a cold.
Even when she
was sick all
week she still
pushed through
all her therapy
sessions. Dan
Sleboda loaned
Jamie a slide
board to use at
hasbro. Jamie
was really
excited to get
that feel for
the ice back.
She is getting a
new foot support
on Tuesday. She
will be so happy
to get rid of
her leg brace.
I believe Dave
Dansereau wants
to keep it for
her as a
reminder of
where she was
and how far she
has come.
Jamies original
plan was to burn
it. We miss you
all and think of
you all often.
See you soon.
God Bless.
Jamies mom
January 14th, 2009
Hi everyone,
Mrs. Sepe called
from Bay View to
check in on
Jamie as she
does often. We
are always so
happy to hear
from her. Jamie
can't wait to
get to Bay View
and they are
excited for the
day she makes it
there. If Jamie
has to miss this
year then we
will see Bay
View in
September. We
are planning to
make a visit
there however it
will probably be
in March. When
Hasbro cast
Jamie on Feb.
9th she will not
be going out as
much. I didn't
explain in the
last update but
Jamies O.T.
Linda from
Hasbro will come
to our house
Monday -
Saturday week 1
and then Monday
- Friday for
weeks 2-3-4.
Linda will be
here for 6 hours
a day for the
constraint
therapy.
Therefore we had
to move her P.T.
and Speech
appointments to
evenings along
with acupuncture
and the Y.
Jamie's spirits
remain high and
she just keeps
plugging along.
Jamie is my hero
for sure. She
goes through a
lot and never
complains. We
will try to find
time to take in
a few games
before she gets
casted. She
misses everyone
at West Bay and
RIxpress. Hope
to see you all
soon. God
Bless. Jamie's
mom
January
10th, 2009Hello everyone,
sorry it has been a
while since the last
update. Right before
Christmas I moved a
few rooms around in
the house in order
to move Jamie to the
first floor. When I
moved the computer
something happened
to the power supply
and I waited for
Ryan's friend Sean
to fix it. Here's
the new news. Jamie
will start
constraint therapy
on Feb. 9th until
March
9th. Constraint
therapy is where
hasbro rehab will
put a full arm cast
on Jamie's left arm
in order to force
the brain to make a
new path to the
right arm to get as
much function as
possible. Of course
we hope for 100
percent. We are
very fortunate for
all the fundraising
done on Jamie's
behalf in order to
do certain
treatments that
other may not be
able to cover. As
awful as it sounds
there are children
out there that have
to go without
because of the way
health coverage
works in our
country. It is a
shame when someone
can take drugs or
drink and the state
will pay for
everything for them
medically even a co
pay but here you
have a 12 year old
that never did
anything to harm her
body and she has to
pay for everything.
Stroke with a 12
year old doesn't
happen often so
coverage can get
away with not paying
for things by saying
there hasn't been
enough studies. I'll
tell you what a lame
excuse to save
themselves money.
Constraint therapy
cost $15,000 dollars
but when you think
that Jamie could get
even 5 percent back
of use for her arm
it is money well
spent. I'm just
venting because it
makes me crazy the
way things work.
People that make
these decisions
about Jamie have not
so much even had a
conversation with
her. They sit
behind a desk and
make life changing
decisions for my
daughter without a
second thought. So
let me take this
chance to thank
everyone who donated
to Jamie in order to
make this therapy
happen. As always
Jamie is taking and
coping with things
great. She
continues to work
hard every day and
is getting stronger
and stronger. Home
school is also going
great. Jamie has 2
teachers that she
had last year in the
7th grade. They are
Mrs. Lapardo and
Mrs. Brodeur. They
are very dedicated
to Jamie and have
been doing an
incredible job with
her. It looks like
at this time she may
not be returning to
school this year but
we will see how
things go. We are in
no rush and have
learned to slow down
and let things
happen as they will.
We still pray for
the day she returns
to the ice and makes
a full recovery.
God bless you all.
Jamie's mom
December 24th, 2008 Hello everyone,
Jamie joined the
Pawtucket YMCA on Summer
Street with Auntie
Charlene on Thursday.
We didn't take a full
tour yet but Jamie liked
what she saw. Starting
on Saturday Dave
Dansereau is going to
set up a routine for her
to follow. She can't
wait to get in the
pool. Jamie has more
arm and hand movement at
this time. She is
getting stronger. This
will be our best
Christmas ever as we
have so much to be
thankful and grateful
for. Jamie and Puck are
napping getting rest for
all the festivities
tonight. We are having
family and friends over
for dinner tonight and
tomorrow. We wish
everyone a very MERRY
CHRISTMAS and hope the
best for you all. We
miss you all and hope to
see you soon. God
Bless.
Jamies mom
December 15th, 2008
hi everyone,
THANK GOD!!!!! Jamies
brain fully healed. She
will not have to have
anymore angiograms and
she does not need to see
Dr. Wakhloo anymore as a
patient. Of course we
will visit him often.
She had a long day and
is now resting at home.
We are about to
celebrate the incredible
news and my brother
Garys birthday. What a
Christmas present.
Jamie just needs to keep
working out to get all
her muscle back. For
every day of bed rest it
goes something like 1
week for each day to
recover. She has come
so far already and
continues to work very
hard every day. We are
just so blessed that she
is on her way back to a
full recovery. That ice
is getting closer all
the time. Thank you to
the u-mass staff for all
you have done. As
always we miss all our
friends at the rinks and
cant wait to get back.
God bless you all.
Jamies mom
December 14th, 2008 Hi everyone,
Well Jamie went for her
pretest on Thursday.
Normally the doctor does not
come to see the patient
however Dr. Wakhloo and Dr.
Coates came down to see
Jamie. The were so
impressed with her
progress. The last time
either had seen her was
Sept. 2nd and they had not
ever seen her standing up
never mind walking around.
Dr. Wakhloo told Jamie that
he had traveled the world
for the last three months to
lecture in front of
thousands of other
neurosurgeons and all are
still baffled about Jamies
case. They still don't know
how something so rare could
have happened to cause the
stroke. Dr. Wakhloo sat and
went over every film of her
brain and answered every
last question she had. He
is a genius. Jamie goes in
for 7 am tomorrow my brother
Gary's birthday. The
surgery takes 2 hours and
then she has to lay flat for
4 hours. My best friend
Lisa Lazzenberry is going
with us as well as Tony her
cousin. In other news all
the work that her O.T. Mike
Mcadams and the others ( ha
ha ) have done at Hasbro has
been working wonderful. I
have to tell you all that
there is something great
behind acupuncture. Jamie
has gotten more back from
Dr. Guo than she has on the
e-stem machines. Dr. Guo
does o.t. p.t. and e-stem
through the acupuncture.
Jamie can now open and close
her hand. Jamie notices the
huge difference in her
movement and also feels it
is from the acupuncture.
Great job everyone on Jamies
team. God Bless you all.
Jamies Mom
December 9th, 2008
Hi everyone,
I have to tell you there is
really something behind
acupuncture. I see a big
difference in Jamie's arm
and leg movement but more
importantly Jamie see's and
feel's the difference. You
should see her light up
after each treatment when
she can do something she
wasn't able to before. Dr.
Guo is amazing. Jamie has
the best team all dedicated
to getting her back on that
ice. Hasbro rehab continues
to work very hard 4 times a
week with her and Dave
Dansereau 1 a week and Dr.
Guo 2 times a week. Speech
2 times a week is going well
and tutor 4 times a week.
Jamie still is using e-stem
daily. She stays very
busy. Puck has kept her
moving all over the place
also. Jamie has a pre test
on the 11th and she has to
go back to u-mass for an
angiograph on the 15th. I
know the spelling is not
right. Her spirits remain
high and she just keeps
impressing everyone daily
with her great attitude and
outlook. We hope all is well
with you all and hope to see
you soon. God Bless.
Jamie's mom
December 1st, 2008
Hello everyone,
Jamie and Puck just fell
asleep. Wow what an
incredible birthday she had.
When we went out to pt today
we couldn't believe how nice
it was outside today. Jamie,
Puck, and I went out for a
birthday lunch together. In
the evening we had the whole
family over and a couple of
her best friends. Haley (
Coyle ) Boulay and Alisha
Sleboda and family helped us
to celebrate. This was a
very important day here at
the house. We are so
grateful for this day.
Kyle's dad made baked
stuffed eggplant that was
out of this world. We also
had spaghetti with meat
sauce, salad, and Italian
bread. The cake was from
Pamela's. It was a huge
number 13. The cake was
delicious. Jamie got to
stay up past bed time to
watch the sports wrap with
Patrick Little and Sara
Hogan. I was happy to share
the memories of the first
time Jamie ever wore skates
at age 3 in our old back
yard. She was so totally
adorable wasn't she? Jamie
enjoyed all the messages she
received today on her side
kick. It went off the whole
day. Jamie's doctors called
in to wish her a happy
birthday. What an awesome
day for her. Puck is great
therapy for Jamie because
he keeps her so busy and
moving quickly. She also
got a WII which is also
great therapy for her.
Working hard every single
day for her hockey
comeback. Stay tuned
hopefully it will be soon.
As always we thank everyone
for their thoughts and
prayers and wish only the
best for you all.
Jamie's mom
November 27th, 2008 Hi everyone, This will be the best thanksgiving of my life. Our family has so much to be grateful for this year. Our family wishes all of you a HAPPY THANKSGIVING. We miss you all. Acupuncture is going great. Dr. Guo is awesome. Jamie is keeping a positive attitude and working hard. Dave Dansereau nominated Jaime for hometown sports hero and she got picked. Her story will air Dec. 1st her 13th birthday on channel 11 at 10:50 pm. Dave has also received a bio-move 5000 machine not yet on the east coast for Jamie to use. Dave is on top of everything making sure Jamie has all cutting edge treatment. We are so grateful for Dave. We pray for all those who have lost loved ones this year especially the King family. Kyle misses you Billy. God Bless. Jamie's mom November 20th, 2008 Hello Everyone,
Jamie had her 3rd acupuncture
treatment today. Since she
started the treatment she says
her hand feels more her own and
she is able to lift her arm over
her head. It's amazing how much
Dr. Guo has helped Jamie with
her function and circulation.
She is learning to relax and
enjoy the experience. Jamie
continues to work very hard each
day. She starts out with P.T.
then O.T. on to speech,
tutoring, acupuncture and then
her night workouts from P.T. and
O.T. Jamie says she misses
school and being on the ice with
all her friends. So she will
keep working until she gets
there. As always we thank
everyone for their calls, cards,
well wishes, and most of all
prayers. When things slow done
a bit we will be out catching
some games. Actually Mrs. Souza
one of the moms from Curvin
McCabe elementary school gave
Jamie tickets to the Boston
Bruins tomorrow night. While we
are in Boston we are going to
visit Spaulding Rehab. Everyone
there will see how all their
hard work has paid off for
Jamie. We can't wait to see
them. It will be awesome having
a night out. God Bless you
all. Jamies mom
November 14th, 2008
hello everyone,
Quick update while Jamie is
reading. Jamie started
acupuncture today with Dr. Jim
Guo on newport ave. near our
house. We hope and pray this can
help circulation and maybe help
move things along with her right
hand. We just hope for the best.
She continues to work hard in
rehab and on homework. I'll
right again soon. God Bless!
Jamies mom
November 9th, 2008
INSPIRATIONAL, UPLIFTING,
HILARIOUS, SPECTACULAR,
INCREDIBLE, UNFORGETABLE day
at JAMIE'S fundraiser yesterday
with the BOSTON BRUINS ALUMNI
TEAM. The Bruins players are
the kindest most thoughtful
group of men you could find. The
Alumni team gave every penny
back to the jamie coyle fund and
donated all their time and cost
for the day to our daughter. The
fundraiser was a huge success in
every way. This was our first
time back to the arena since
August and we were looking to
make new and happy memories and
that was accomplised to the
fullest. The great Mr. Rick
Middleton and the great Mr.
Terry O'Reilly escorted Jamie
onto the ice for the ceremonial
puck drop and pictures with both
teams. Finz from the Worchester
Sharks provided intertainment to
the crowd. Team Fight for 7 came
to play and the final score was
15-10 Boston. You can't imagine
and I can't fully describe the
feeling's that Jamie and her
Fight for 7 team felt sharing
pizza and conversation with all
the great Bruin hockey players.
There will be pictures on
Jamie's web site from Dave Czarn
official Fight for 7
photographer to share the
memories with those who had to
work but wanted to be there.
Also Melanie from cox varisity
life filmed the day as a
followup to her last story on
nov. 3rd. Our family is so
thankful to all who participated
in the games. Samantha Mattera
the only female player on
team fight for 7 represented for
the girls. She played awesome.
Great goal Samantha. We have
special thanks to Mr. Wes Tuttle
manager of the new england
sports center and his beautiful
wife Marylou ( also a stroke
survivor ) for being so kind to
Jamie. Mr. and Mrs. Tuttle
helped to make the day as
perfect as it was. Thank you to
the Sleboda family, the
Abbenante family, and my
favorite nephew Tony for their
endless work and dedication to
our daughters recovery. They
organized the entire event and
things could not have been any
better. Mr. Shoebottom Jamie
enjoyed talking with you. Mr.
Middleton what can we say
besides your are incredible. In
other news Jamie dropped the
ceremonial puck with her present
coach Digit Murphy for the first
home game for Brown University
womens team. Another uplifting
great night. Today is Jamies
last day of lovenox shots.
YEAH. As always we love you all
and thank you all from the
bottom of our hearts. GOD
BLESS...... Jamies mom
November 1st, 2008
Jamie continues to work very hard
and gains more strength each week.
Hasbro is getting ready to make
another adjustment to her leg brace
as the knee is getting stronger.
Yesterday at Hasbro they casted
Jamies left arm which she relies on
heavily in order to force her brain
to find new paths for the right arm
to come all the way back. Jamie has
not been eating any junk food so
she didn't mind at all to be casted
and not go trick or treating.
Instead we went to visit one of her
friends in the hospital and enjoyed
her friends favorite meal of taco
bell. We had a great visit and
couldn't of had a happier halloween.
When we returned home some of her
friends stopped by to see her and
she was very happy. Yesterday she
also recieved a package from Bay
View Academy which had her favorite
pair of sweats in it. Every 8th
grade student made Jamie a card. You
can tell that they spent a lot of
time on the cards, each one was
different and so elaborate. The
girls there are so sweet and
thoutful their parents can be so
proud of them. Stephanie Martineau
and friends had a bake sale to raise
funds for the Jamie coyle fund and
they were very sucessful. GREAT JOB
Bay View for looking out for one
another. Thursday cox cable did a
piece on Jamie at Hasbro to raise
awareness to pedi stroke. They are
coming to the house today to finish
the piece which will air on Monday
the 3rd at 7:30pm on cox channel 3.
Hopefully some genius watching will
come up with ideas to better help
stroke survivors get back to where
they were before the stroke. Right
know as it stands it looks like
Jamie will be back to school in Jan.
and back skating shortly after. This
is all she dreams about and works so
hard to achieve her goals. Hope to
see you all at the Bruins game next
Sat. the 8th. GOD BLESS everyone and
please continue to pray for Jamie
and her complete
recovery.
Sharon
October 20th, 2008 Hello everyone,
Jamie just got back from P.T. and O.T.
and will be tourted at 2:30 then on to
core training after dinner. She
continues to fight hard each and
everyday to get back were she was
before. Her spirits continue to be
high. She is an incedible person. Her
friends continue to visit and brighten
up the day. We are grateful for all our
friends and family that look out for us
daily. Jamie now is walking without a
cane and she has wrist movement and some
finger movement coming back in. Her leg
is getting stronger by the day. She was
outside with her friends this weekend
practicing her slap shot. As you all
know she cannot wait till the day she is
back on skates and neither can the rest
of us. The way things are going it wont
be much longer. We think of you all and
wish you all the best. Thank you for
being there. God Bless. Sharon
October 13th, 2008
Hi everyone,
Sorry it has been a while since an
update but Jamie has been very busy. She
continues to get stronger and is pushing
hard every day to reach her goal of getting
back on the ice. Seeing she works so hard
all week I make sure she plays hard on the
weekends. This past Friday Jamie was
invited to the first annual " fight like a
girl" tournament to support breast cancer at
west bay. Jamie dropped the game puck
opening game for her u-14 team coached by
Greg Inman and Will Wright. After the game
the coaches took all the girls out for pizza
and a great time was had by all. We went to
support them in the finals on Sunday facing
the team they beat at regionals last year.
West Bay took second place even though they
played a great game. It was allot of fun
seeing all Jamie's friends and the parents.
We took in a Brown game Sunday afternoon
also. We love cheering on both teams as
Jamie is a team member on both. She cant
wait to be skating with them again. Monday
we went to providence college for a day all
about girls hockey in Rhode Island. The
head coach Bob Deraney along with the
assistant coaches Meredith Roth And Amy
Quinlan made Jamie feel right at home. Sue
Sleboda and I set up a table to sell "fight
for 7 " bracelets that Jamie designed
herself and we sold tickets to the Alumni
game in November. Every single P.C. player
stopped by to introduce themselves to Jamie
and chat with her. I have to say the head
coach has led the girls by example because
his players showed allot of class. They were
the sweetest most sincere group of girls I
have met to this day. They could not have
been any nicer to Jamie. A very positive
day which keeps us pushing through the tough
times. P.C. also donated some awesome items
to use for the silent auction in November.
Thank You everyone for a great weekend for
Jamie. God Bless everyone. Jamie's Mom
Saturday, October 4th, 2008
Hello
everyone,
As
you all know Jamie is home thank GOD. She has
had a busy couple of days. She started rehab at
Hasbro Rehab on Allens ave. Providence. Its a
new facility and it is really nice. She will go
in the pool on Monday. Last night she was a
special guest of the Providence Bruins. What a
night she had set up by Sean Marshall and Steve
aka Scott. The two greatest guys around showed
her a night she will never forget. They treated
Jamie and her 2 friends Alicia and Alissa like
princesses. The girls started with a tour of the
locker rooms, met with the players, did a radio
interview, sat on the bench during warm ups, and
Jamie got to drop the game puck. Steve followed
Jamie around the entire night catering to her
every need. How neat is that. We both are
extremely happy to finally be home and sleeping
in our own bed. Without us girls being home you
can only imagine all the house work we have had
to do since Wednesday. Gone for 2 months and 4
guys left alone it will take us a week to get
things back to normal. Jamie continues to work
very hard to get back on the ice. Besides rehab
at Hasbro 4 times a week she is taking private
karate lesson at home from her old teacher
Carlos Miranda the miracle worker. She will
start PT with David Dansereau soon. I am
trying to juggle her schedule between tutoring,
pt, ot, speech, karate, and the ymca. We are so
grateful for everything that everyone has done
to help Jamie progress in her recovery. Thank
you for all the prayers for her speedy
recovery. We love you all. God Bless
Update 9/26/08
hi everyone,
I wrote a letter Wednesday night to thank
everyone involved with the Curvin McCabe
dinner and when I went to send it I erased
it by accident. I have to say Jamie and I
were totally moved by all the hard work
everyone put in to make the night "perfect".
My friend Mrs. Sleboda called from the event
so we could hear the great time enjoyed by
all. We heard how awesome the cafe looked
and what a great job my girls Kathy, Lee,
and Brenda did on the food. The teachers
were hard at work baking all the homemade
desserts and serving everyone. We thank you
all for caring so much about us and for
being with us since the beginning. Curvin
McCabe is a close family where we all look
out for each other. Having Mrs. Fazio at
the helm we didn't expect anything less.
Thanks for making the night perfect.Thank
GOD for each and every one of you. I'm just
getting Jamie ready for bed after a hard day
of rehab. There is one other person that we
have not had a chance to tell how much we
appriciate him and that is NICK MATTERA.
Nick keeps us linked to you all through this
website. Obviously he is an incerdible
person working endless hours for Jamie.
This website has been such a hugh
inspiration to Jamie I believe its what
contributes to her positive attitude. We
love you and cannot wait to see you. Next
update should be from home. ( woo-hoo )
Update
9/18/08
Update
9/18/08
as always we
would like to thank everyone for all their prayers and
inspirational messages sent to jamie. with all this
positive only good things can happen. thank you sherry
and the givens family for the d&d cards. spalding has
one on the first floor. good call. the cards were
beautiful. thanks mrs. graveline for the special cards.
get ready to receive a few calls about the dinner at
curvin. even when im not there i manage to send you
phone calls. jamie and i rowed a canoe down the charles
river yesterday with the adapted sports program here.
the weather was beautiful and the company we had was
great. we had so much fun. it was fabulous getting away
from the stresses here for 2 hours. speaking of getting
away they are giving jamie a day pass to visit home for
a few hours on saturday. anyone that would like to come
visit is more than welcome. jim and my brother-in-law
are cooking on the grill for everyone. we cant wait to
see our home, our pets, and our friends. we go on a bus
with all the kids here tomorrow apple picking. jamies
spirits are high like usual because she is a great kid.
she handles more than i can. she improves every day. she
will be trying a new robotic machine on her arm in the
morning. we pray to get the right arm moving. it is only
a matter of time. bayview and mount st. charles thank
you so much for the morning prayers. love jamie and
sharon
Update
9/14/08 |
|||
|
Update
9/10/08
jamie is starting tutoring in a few days so we started with labeling everything in her room in spanish. thank you to the 3rd graders at curvin mccabe for the awesome cards. it helped fill in some time reading them all. all the cards were so uplifting not to mention they filled in alot of window space. [ ha ha ] still working very hard and getting tired out. we cant wait to get home. octotber 1st cant come quick enough for us. we miss you all and think of our friends every day. god bless. love jamie and sharon |
|||
|
Update 9/8/08
Jamie says
hello to everyone and misses all her friends. She loves
it here at rehab they are very nice and keep her busy.
She is working hard and getting stronger by the day. In
between different activites during the day we sit out
back on the Charles River and watch the boats go by.
There is an awesome park were we watch skate boarders
during the day. Can't wait to come home. Sharon
Update 9/3/08
hey everyone,
this is
jamies mom. we moved to spalding today and had a very
busy day. we thank god that we are here and jamie is
recovering nicely.while jamie is sleeping i wanted to
take a moment to say thank you from the bottom of my
heart. the prayers and well wishes from around the
country are inspiring to jamie and our whole family at
this time. our support system has gotton us through the
toughest times one could imagine. it is tough to find
the exact words to express how incedible everyone has
been and how greatful we are for all the support. we can
feel the love and it is pulling us through. god bless
you all and know how much we love and appreciate all you
do for our family.
Update 9/2/08 Jamie has arrived in Boston!
Today Jamie left Umass Medical Center to move to her rehab center late this morning and has already taken part in Occupational Therapy as well as Physical Therapy and was to also meet with the Speech Therapy people as well tonight. As soon as Jamie walked through the door someone at the front desk said “You must be Jamie Coyle we’ve heard a lot about you” my how news travels fast about this special little lady!
Jamie was also able to move her right arm with no gravity and had some feeling in the right shoulder. Things are looking better and better each day. We will try to keep up to date as much as possible, but it might be a little tough without being able to travel there daily. Please keep your prayers coming for a speedy recovery.
Update 9/1/08 For those that missed the opening ceremonies of the benefit games this weekend for Jamie you will be happy to hear that Jamie will be moving to Spalding Medical Center in Boston tomorrow. The Doctors are very happy with all the progress that she is making and think it is time to start on rehab. There visit’s will be short and not as many people, mostly family allowed, but please make sure you stay in touch through her message center and wishing her well.
Jamie also saw some of the video’s and pictures from this weekend and loved it and wanted to thank everyone that came out to support her.
Update 8/26/08 Jamie has been having some pretty good days as of late. She is getting more and more mobility in her right leg, as well as her speech getting better and better by the hour. The doctors had some test’s for her with some tough words and she aced it. The doctor was very impressed!
She has also been getting more and more message’s on her site and she receive one the surprised her totally. She received one from Travis Roy. A former Boston University player who was paralyzed in the first 11 seconds of his college career. His not to Jamie can be found on her message board. That is not all for this week though. Jamie had Patrick Travers for the Worcester Ice Sharks come in and visit her and talk hockey with her. He also invited her to come skate with the team once she gets back on skates. She was so very happy about that!
A few hours later she got another surprise. USA Olympic medal winner Katie King came walking into her room with the Gold, Silver and Bronze medal’s that she won at three of her Olympic games. Jamie and friend Casandra Sherman were in shock. Both of them got to hold the medals (as seen in the pictures) and talk hockey with Katie. It was an amazing event that had Jamie saying “wow I feel special and important.” As everyone knows that is Jamie’s goal is to get to the Olympics and I don’t know of anyone that would think of doubting this unbelievable little girl who has battled back so far in such a short period of time.
Jamie will be having some more tests done this week which will determine the next step in her recovery. Please keep the prayers coming! Update 8/20/08 After a great weekend and lots of progress the doctor’s wanted to make sure Jamie was had as close to a clean bill of health before she went to Spalding Rehabilitation Center. Jamie will be staying for a few more day’s with the AWESOME doctor’s at Umass who continuously keep Jamie’s spirits up. Jamie had a procedure this morning and did an awesome job! The Doctors will check up on her in a couple of days and will have a better idea of when she will go to rehab. Keep those prayers coming and thank you for all that have come already (From the Coyle’s.) Update 8/18/08 What a weekend!
There were many good things for Jamie this weekend. Lots of people would have been happy with the fact that Jamie was able to bringboth legs into her body or maybe the fact that her smile was getting bigger and bigger over the weekend. Oh don’t forget the fact theshe went outside for the first time on Saturday. There were a ton of little things that made everyone smile this weekend, but NOBODYcould have beat the smile that was given this weekend when Andrew Bettencourt walked in room 538.
Andrew is Jamie’s idle for hockey player’s and has been for many years.
Andrew and Jamie have been friends for a longtime and the
Jamie knew that nobody could say no to her so she started a trend that
must be continued, per order’s of Jamie. Any guy that walks
It
was an awesome weekend and Jamie is getting stronger and stronger by the
minute and fights her hardest as always. Keep up the Update 8/15/08 Hello everyone,
This is Jamies mom.
Its 9:54 pm on Friday 8-15-08. My angel is sleeping comfortably
right now so i wanted to take a minute to express some
thoughts. As you all can imagine 8-9-08 has changed life as we
knew it forever. First I would like to thank god for
looking out for my baby. We are truly blessed for our family
and friends. We can feel all the love and well wishes from
everyone. My husband and myself couldnt have made it this far
without you picking us up when we were at our lowest of lows.
Jamie has a long struggle ahead however she is a very special
person and i have all the faith that she will be fine. We are
at a loss for words that could express just how amazed we are
with all the support jamie is recieving from the hockey
community. Jamie and I read these messages daily now and the
messages bring a smile to her beautiful face. She gets stronger
each day and your words of encouragement are heaven sent. Jim
and I would like to thank everyone that has been so incredibly
helpfull to us while we need to stay strong for jamie. Jamies
coaches and teammates are the most caring amazing people in the
world and thank god for them. We love you all and couldnt have
made it through without you all. Henry Sherman and family god
love you all for going above and beyond. Jim Hopgood you are one
of a kind. I cant mention everyone right now because i need some
sleep while she sleeps but you all know who you are. As for
Jamies genius doctors thank you for bringing our baby back to
us. For this we are forever in your debt. Dr. Coates we will
always have a bond. Your the most beautiful person i have ever
met. Andrew Bettencourt you are wise beyond your years and will
never know just how much your visit meant to Jamie today. Again
we cant thank everyone enough for all the support for jamie. God
Bless you all. Sharon and Jim
Update 8/15/08
Update 8/14/08
Update 8/13/08
Update 8/11/08
Efforts are being made to set up a fund for
any donations, Please check back for details |
|||
